| 1. |
- Flemme, Inger, et al.
(författare)
-
Quality of life in relation to ICD shocks and uncertainty in patients living with an ICD : a 5-year old follow-up
-
Annan publikation (övrigt vetenskapligt/konstnärligt)abstract
- Aim: To describe quality of life (QoL) in relation to ICD (implantable cardioverter defibrillator) shocks and uncertainty in patients living with an ICD and to identify QoL predictors over a 5-year period.Methods: The Mishel Uncertainty in Illness Scale and Quality of Life Index were used for 35 patients. Higher scores indicate higher uncertainty and QoL.Results: From baseline to year 1, QoL overall (p = 0.033) and in the socioeconomic domain (p = 0.006) decreased. From year 1 to 5, QoL in the socioeconomic domain increased (p = 0.027) but decreased in the family domain (p = 0.039) as did uncertainty (p = 0.009). From baseline to year 5, uncertainty (p = 0.009) and QoL in the family domain decreased (p = <0.001). Patients reporting few ICD shocks were less troubled over time, thus uncertainty is a predictor of decreased QoL.Conclusion: ICD-patients felt better at year 5 than year 1. QoL was reasonably good 5 years post-implant, and patients felt more certain and perceived the ICD as a lifesaver.
|
|
| 2. |
|
|
| 3. |
- Ziegert, Kristina, et al.
(författare)
-
Health in everyday life among spouses of haemodialysis patients : a content analysis
-
Annan publikation (övrigt vetenskapligt/konstnärligt)abstract
- Despite the fact that haemodialysis requires that spouses support and assist their partner during the treatment period, little attention has been focused on their health. The aim of this study was to explore experiences of health in everyday life in spouses of haemodialysis patients. The study had an explorative and descriptive design based on content analysis. Thirteen participants were interviewed in their home without the presence of the patient. The results show that arduousness was experienced when that spouses' everyday life was taken up by caring for the patient at the expense of his/her own health. Spouses exhibited stamina and neglected their own health when focusing on the patient and minimising their own condition. Independence in everyday life revealed that spouses who cared about themselves and looked after their own health experienced relaxation and happiness, which protected their health. Clinical interventions should include an assessment of the spouses' health and everyday life in order to plan the care to ensure that it is directed towards increasing their independence. Future study could be done with a grounded theory method on this population to determine relationships between elements of the social process of arduousness, stamina and/or independence in the context ofhaving a spouse experiencing haemodialysis.
|
|
| 4. |
- Ziegert, Kristina, et al.
(författare)
-
Time in everyday life as experienced by next of kin of haemodialysis patients
-
Annan publikation (övrigt vetenskapligt/konstnärligt)abstract
- Aim The aim of this study was to explore the content of time in everyday life as experienced by the next of kin of haemodialysis patients.Background Chronic renal disease often requires haemodialysis which is a time-consuming treatment that necessitates careful planning of everyday life and involves next of kin to a large degree. Next of kin's time can be severely restricted when his/her life is devoted to the needs of the haemodialysis patient.Method This study used explorative and descriptive design with a qualitative content analysis approach. Twenty next of kin selected purposive with the criterion of having at least one year of experience as a next of kin of a patient on haemodialysis.Results Analysis of data from the interviews revealed experiences of time in everyday lives of the next of kin of haemodialysis patients. Their experiences were reflected in the concepts fragmented time, vacuous time and uninterrupted time.Conclusion The experience of time in the everyday lives of next of kin of haemodialysis patients demonstrated that time for themselves was minimised and that common life space contracted. The next of kin were also aware of the prognosis of renal disease and the fact that haemodialysis was a life-sustaining treatment, which forced them to live in the present. They afforded wellness when they experienced a break from everyday live and could use their time for their own needs. Attention should be focused on time in the nurse's assessment of the next of kin's everyday life and whether or not next of kin have sufficient time required for the patient's care. There is need for further research that focuses on a generalisation of the fmdings by means of the development of instruments that can contribute assessment of time in everyday life among next of kin of chronically ill patients.
|
|
| 5. |
- Ziegert, Kristina, et al.
(författare)
-
Time in everyday life as experienced by next of kin of haemodialysis patients
-
Annan publikation (övrigt vetenskapligt/konstnärligt)abstract
- Aim The aim of this study was to explore the content of time in everyday life as experienced by the next of kin of haemodialysis patients.Background Chronic renal disease often requires haemodialysis which is a time-consuming treatment that necessitates careful planning of everyday life and involves next of kin to a large degree. Next of kin's time can be severely restricted when his/her life is devoted to the needs of the haemodialysis patient.Method This study used explorative and descriptive design with a qualitative content analysis approach. Twenty next of kin selected purposive with the criterion of having at least one year of experience as a next of kin of a patient on haemodialysis.Results Analysis of data from the interviews revealed experiences of time in everyday lives of the next of kin of haemodialysis patients. Their experiences were reflected in the concepts fragmented time, vacuous time and uninterrupted time.Conclusion The experience of time in the everyday lives of next of kin of haemodialysis patients demonstrated that time for themselves was minimised and that common life space contracted. The next of kin were also aware of the prognosis of renal disease and the fact that haemodialysis was a life-sustaining treatment, which forced them to live in the present. They afforded wellness when they experienced a break from everyday live and could use their time for their own needs. Attention should be focused on time in the nurse's assessment of the next of kin's everyday life and whether or not next of kin have sufficient time required for the patient's care. There is need for further research that focuses on a generalisation of the fmdings by means of the development of instruments that can contribute assessment of time in everyday life among next of kin of chronically ill patients.
|
|
